NT Health manages a number of hospital and health related data collections which describe the characteristics of hospitals from admitted patients and the care they receive in hospital to emergency department waiting times. NT Health also manages Primary Health Care data collections which comprises of remote primary health centres, NT Immunisations, Mental Health, and Alcohol and Other Drugs services. This Health data represents significant value to researchers and NT Health.
All requests for the use of the Department’s data for the purpose of research must have the approval of one or both NT Human Research Ethics Committees, depending on the research and the population to be covered by the research. This includes research projects using NT data held by Australian Government agencies or SA NT DataLink.
For data to be released, the Data Release Request Form must be updated to include:
Patient/client level information will only be disclosed for research purposes if all the requirements of Information Privacy Principle 2.1(ca) have been complied with. Due to the level of granularity, the additional approval of the Department’s Chief Medical Officer will be obtained.
The document specifically being:
Data Governance Unit
Phone: 8924 7197
SA-NT DataLink Provides access to accurate and unbiased information held by Government agencies and other organisations that can better inform research, policies and practice is central to the role of SA NT DataLink. Research using de-identified data linked for large or entire populations are much more inclusive, representative and unbiased, and also more cost effective and efficient than conventional studies based on sampling.
Operating under the lawful release of data for research and analysis through the Privacy Act, 1988 (Cth) or other legislation, SA NT DataLink provides a statistical data linkage service to enable third party researchers and analysts to be approved to access and use de-identified data from multiple data sources. The privacy protecting model's foundation is information security which maintains confidentiality, and provides ethically approved researchers safe and secure access to specifically approved data.
ANDS is here to help by leading the creation of a cohesive national collection of research resources and a richer data environment that will: make better use of Australia's research outputs; enable Australian researchers to easily publish, discover, access and use data; enable new and more efficient research.
Research Data Australia helps you find, access, and reuse data for research from over one hundred Australian research organisations, government agencies, and cultural institutions.
This toolkit provides detailed information to support researchers in managing and recording their research data procedures regarding ownership, collection, organisation, storage, backup, retention, disposal and access